A recent study of health-conscious internet users found that although individuals may be willing to participate in a trial, they are not always aware of sources of clinical information1. This suggests that there is a lack of awareness of clinical trials, even among individuals who are active in their healthcare and are looking for new treatment options. As a result, we thought we would share three important web resources for clinical trials.
Clinical Trials Registry
The Clinical Trials Registry is produced by the U.S. National Institute of Health (NIH) and the Food and Drug Administration (FDA). This site includes a database of clinical trials talking place around the world. Results of studies are also available on the site.
The Clinical Trials Registry contains information for over 100,000 trials that can be searched by disease or condition, location, outcome measure (i.e. what is being tested), phase of trial etc.
This site also features a Frequently Asked Questions page that provides information about how clinical trials work.
Centre Watch is an informational site catered to both patients and research professionals. This site has a database of ongoing clinical trials and drug information and provides the option of signing up for an email notification when a trial for your disease or condition becomes available. Like the Clinical Trials Registry site, Centre Watch informs patients about the process of clinical trials including safety, informed consent and clinical terminology.
The Center for Information and Study on Clinical Research Participation (CISCRP)
The CISCRP site is dedicated to public, patient, medical/research community, and media education about clinical trials. CISCRP also provides access to a database of current clinical trials and provides a ‘custom search’ service for individuals who are having difficulty locating a trial for their condition/disease.
CISCRP recognizes that without patient participant, medical knowledge could not advance and has created the Medical Heroes Community for individuals with an interest in clinical trial participation.
The Canadian Centre for Clinical Trials
We hope that these sites will help empower you in your decision-making process. As always, the CCCT is also a great resource for clinical trial information including the availability of trials localized in the Greater Toronto Area. If there is not a trial for you today, we can add you to our patient database so we can notify you should a trial become available.
For more information about ongoing trials at the CCCT, please visit the Trials Page.
Additionally you may contact us via:
Telephone: (289) 597-0106
1For the full report please visit: http://bluechipmarketingworldwide.com/BCPR_form/BlueChip_SocialMedia_5-2011.pdf